Turner Syndrome Global Alliance (TSGA)
Kelly Ranallo, healthcare entrepreneur, parent advocate and Founder/President of Turner Syndrome Global Alliance (TSGA) is mother to a teenage daughter diagnosed with TS in 2006. Her daughter’s illness inspired Kelly to advocate for girls, women and families with TS. Partnering with Children’s Mercy Kansas City in her role on the Family Advisory Board (FAB), she collaborated with CMH in establishing a TS clinic to address unmet needs of families in the Midwest; opening Great HeighTS Clinic in 2010, which now serves 31 pediatric based clinics across the country. In July of 2018, the TSGA partnered with the University of Kansas Health System launching a first of a kind adult TS specialty clinic to advance transitions of care and research development across the lifespan.
Beyond TS, Kelly launched RareKC, a nonprofit to accelerate diagnosis, care and treatment of rare conditions through patient-driven collaboration and innovation in 2015. Kelly has become a globally recognized Rare Disease advocate, and with RareKC has been named recipient of the Global Genes Champion of Hope in advocacy collaboration, advancing care and research innovation for 30 million Americans impacted by rare conditions.